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Merged facilitated communication/Carly's World (Autism)

However, there have always been times when sensory overload made it impossible to speak,

Can you tell us more about this? What was happening that made it difficult to speak?

There have been times, in high-pressure situations, that I have become so breathless that speech was extremely difficult. I was wondering if what you experienced was siimilar.
 
At around 6:22 you can see what I assume is her typing, which is not at all like those "I'm autistic but I'm a person too" bits.

ETA: Oh, shoot. Guess what's mentioned in the tags? That's right, 'thimerosal'.
 
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IOW, it's common for an autistic person to be very good at narrow skills A, B, and C while very bad at narrow skills D, E, and F, and maybe average at G, H, I (not necessarily in those proportions). Which is why from my subjective perspective it is intuitively makes sense that 1 in 10 autistic people would be savants as well, even with significant disability in other aspects of cognition.

Right, I am inclined to say that there may be extreme cases of autism out there where typing may have helped in communicating with others, but in this instance, in this thread, so far I have only seen what looks like a hoax.

This thread could be about anything, from magic, to a psychic reading. It just happens that the girl in the video is autistic, and the ability that they want you to believe is communicating through typing.

Did they not think that there would be those out there that wouldn't believe it? Sure, that is what makes it newsworthy. So then why not show more proof, instead of this obviously poor editing job.
 
Did they not think that there would be those out there that wouldn't believe it? Sure, that is what makes it newsworthy. So then why not show more proof, instead of this obviously poor editing job.

Because they know most people will believe whatever they're told?
 
At around 6:22 you can see what I assume is her typing, which is not at all like those "I'm autistic but I'm a person too" bits.

ETA: Oh, shoot. Guess what's mentioned in the tags? That's right, 'thimerosal'.

Of course autistic people know exactly why they're autistic. Aren't they indigo, or denim or something, too?
 
1. It doesn't actually show her typing much of anything.
She types really slowly. Perhaps the reporter didn't want to make a six hour news report.

2. The typed passages it shows have perfect punctuation and capitalization...how does she do that when she types with one finger?
StickyKeysWP?

3. The texted conversation shown looks far more realistic than the "prepared" statements.
Chats tend to be messier for everyone.

4. Her descriptions of autism look like they could come straight out of a psychology textbook.
She may have read about it.
 
I watched a film the other night about an autistic Thai girl who became really good at martial arts from watching TV. She then used her skills to beat up approximately 120 guys to avenge slights against her mother. This story is about as likely.
 
Red flags:

1. It doesn't actually show her typing much of anything.

2. The typed passages it shows have perfect punctuation and capitalization...how does she do that when she types with one finger?

3. The texted conversation shown looks far more realistic than the "prepared" statements.

4. Her descriptions of autism look like they could come straight out of a psychology textbook.

Apparently she types very slowly, and often needs lots of encouragement to keep going. I think we can forgive the producers of the video for not showing an hour of footage where she typed a sentence. That doesn’t prove she can do what they claim she can do, but it doesn’t give cause to disbelieve it either.

I think the producers of the video took some artistic license with the passages and showed a recreation of what she wrote, with spelling and grammar cleaned up. It may also be meant to represent the other software she has worked with. According to an interview with her parents and her (short lived) blog, she has worked with lots of programs that include things like selecting words instead of typing them out. The big question, I think, is how much editing of the actual text (rather than just punctuation and capitalization) was done.

Your comment about the texted conversation is also what caught my attention. The few other samples I have been able to find of what appears to be her actual typing appear similar. All lower case, little to no punctuation, misspelling, repeated characters. And the context in those cases seems distinctly different, as well. We find messages like “is he cute” and “i like when dad reads to me at night” and “i would like to ride a snowmobile can we do it”. Those statements, while I think very impressive for her condition, are a far cry from the recreated passages in the video and in her blog.

The video also gives the impression that she was put in front of a keyboard and just miraculously started typing and communicating. The interview with her parents paints a far different story. Since she was diagnosed at the age of 2, they have spent tons of time and money working with her, teaching her letters and words, putting labels on everything, hiring specialists (up to 3 a day) to work with her essentially non-stop, reading to her, working through all kinds of learning and language and communication programs, and providing her with multiple type of software and devices for communicating.

And after many years, she got to a point where she could type some basic communications. And I do tend believe that she was able to type those non-recreated passages. And I think that is an impressive story.

But I do think the story being told is an exaggeration. I would hazard a guess that the “prepared” statements and the posts in her blog are a conglomeration of things she has said, in simple terms, over many days or weeks or months or even years, which her parents or somebody else has put together into a cohesive passage and presented as “what she said”.

I think the true story probably is impressive. But the true story, I think, has the big heart sinker that very, very few parents of autistic children have the time and money and resources to do what these parents did to get just basic communication. I think the parents, having invested so much into this effort, upon achieving some results became ecstatic and wanted to shout messages of hope from the roof tops. And good for them. Btu those messages, while good intentioned, are misleading. A child in this condition, with a very great deal of time, money, resources, and effort may be able to establish some communication. A child in this condition will not be able to simply be sat in front of a computer and begin to wax eloquently, which is the false portrait being painted.
 
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You have a really good point. The true story is probably more extraordinary, sadder, and more inspiring. They touch on the fact that many years were sacrificed for their daughter, and this is what should have been reported on.

The story as is presents a miracle of a girl with no communication all of a sudden typing and expressing herself. What actually happened I feel is an example of the amazing problems that people can overcome when faced with seemingly impossible circumstances. Her parents should feel proud of her, AND themselves.
 
Can you tell us more about this? What was happening that made it difficult to speak?

There have been times, in high-pressure situations, that I have become so breathless that speech was extremely difficult. I was wondering if what you experienced was siimilar.
I've had this happen to me. It's hard to describe, but it's not being breathless. Words simply will not come out of my mouth. I can't seem to form any words in my mind, either. It's like language completely deserts me for a few minutes. In fact, I've also had it happen the other way around, where someone else is talking and I can talk, but what they're saying just sounds like noise.

It's kind of like there's so much going on at that moment that my brain gets overloaded and shuts a section of itself down. It's scary when it happens.

I'm sorry if that doesn't make much sense, but I'm trying to describe something that I don't really understand myself.
 
And three years down the road, this is showing up on facebook again. Same clips as in this thread.

What does it take to kill a meme? Carly ought to be in college by now.
 

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