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gee, aren't they nice

kittynh

Penultimate Amazing
Joined
Dec 18, 2002
Messages
22,634
I was looking at a blog for someone that has a wife dying of breast cancer. The family is going through the normal treatment routine, chemotherapy and all that. The wife is quite ill and going to die.

The family is barely making it financially. Then I read this...

I've no clue if this supplement does any good,but $400 a month!!!

I know when one is desperate one will try anything.

But it makes me sad that this site will take DONATIONS so the patient can afford the supplement. Isnt that nice of them?

Here is a bit from the blog.....................


On of the things that Lynn feels has helped here a lot is a set of supplements from a company called Mannatech. That’s the good news. The not-so-good news is that these supplements set us back over $400 each month.

Apparently, folks can go on the Mannatech website and donate funds toward a particular customer’s account. Lynn & I will be completing whatever set up we need to in order to make this available for anyone who wants to help out in this way. We will try to have a link to this page on Lynn’s CaringBridge website on or before Tuesday, the 15th.
 
Ouch. Maybe someone should 'donate' the link to quackwatch for them.
 
I sent a forward to these people. $400 a month, to be donated by friends. It's so sad.
 
I found the site:

Apparently, folks can go on the Mannatech website and donate funds toward a particular customer’s account. Lynn & I will be completing whatever set up we need to in order to make this available for anyone who wants to help out in this way. We will try to have a link to this page on Lynn’s CaringBridge website on or before Tuesday, the 15th.

It's Mannatech that sets up the donation acceptance! What a scam!

If a drug company did that...

So unethical!

It's shocking what MLM can get away with. Ugh.
 
kittynh said:
I was looking at a blog for someone that has a wife dying of breast cancer. The family is going through the normal treatment routine, chemotherapy and all that. The wife is quite ill and going to die.

The family is barely making it financially. Then I read this...

I've no clue if this supplement does any good,but $400 a month!!!

I know when one is desperate one will try anything.

But it makes me sad that this site will take DONATIONS so the patient can afford the supplement. Isnt that nice of them?

Here is a bit from the blog.....................

First, I question your assertion that "the family" is going through any "treatment routine", including chemotherapy.

Second, if the woman is going to die (you said it), let her take any medication OR SUPPLEMENT she wants (including heroin), and if third parties want to finance it, so what? What is wrong with you?
 
Re: Re: gee, aren't they nice

TeaBag420 said:
First, I question your assertion that "the family" is going through any "treatment routine", including chemotherapy.

Second, if the woman is going to die (you said it), let her take any medication OR SUPPLEMENT she wants (including heroin), and if third parties want to finance it, so what? What is wrong with you?

Oh really. You honestly see nothing wrong with Mannatech selling baloney for $400.00 per month? You see nothing wrong with supporting this unethical practice of setting up donations for themelves?

I honestly wonder why you figure it is okay to take sick people and feed them baloney that won't help at all in place of something that might offer real comfort. Mannatech's garbage won't help at all when the illness is in it's last stages, no matter how strongly one tries to convince themselves.

The woman is undergoing chemo. Do a simple search, and you will find the site. I can pm the link as well if you wish.
 
Eos, I would be VERY careful to be sure the "patient case" was not some faked up sob story put up as an inducement by the drug company (or whatever it is) to draw in donations. If they are cynical enough to try to sell their junk to dying people, they may well be cynical and cold enough to run this sort of low-down scam. I smell a rat...

Facts first, OK?
 
I read it first in the husbands blog. It's legit.

Look, why should giving $400 to rip off artists that have been in jail really make a dying person feel better?

How about telling everyone to make a donation to the American Cancer Society instead? Let's find a cure!

How about donating $400 to the childrens center at a cancer clinic?

How about just going to buy some juice at the food co-op that has the same properties?

How about rewarding these bozos with millions of dollars will only make more people set up sites? And those sites to get the money will promise even MORE. And some people, if not this person, will give up traditional medicine for this stuff if the promises are good enough. All it takes is a small print disclaimer to be able to claim about anything.

It's like paying a kidnapper.

Only the kidnapper kills the victim. Then kidnaps someone else. And it goes on.
 
I plugged Mannatech fraud into Google and came up with a number of interesting sites. Eos already posted a link which leads to one of the most informative ones, an article entitled "AMBROTOSE AND BEYOND" by Moira Smith about the dubious Dr See and his connection with Mannatech.
Network-marketing company Mannatech arrived in Australia promoting its glyconutritional supplements containing "Ambrotose Complex" around the beginning of 1999. Much of the company’s publicity was aimed at people with fibromyalgia and Chronic Fatigue Syndrome, and at doctors who practise complementary medicine. Mannatech’s claims for Ambrotose were particularly compelling, due to the apparent existence of an independent, Government-funded scientific research study, published in a medical journal, proving its effectiveness.

This study was said to have been funded by the USA National Institutes of Health, and conducted at the prestigious University of California Irvine Medical School (UCI). The author, Associate Clinical Professor Dr Darryl See, was already known as an immunologist with an interest in CFS.

The results were published in a paper entitled "An in vitro screening study of 196 natural products for toxicity and efficacy" in the Journal of the American Nutraceutical Association (JANA) in February 1999...

The JANA paper and See’s credentials bestowed an aura of scientific respectability that was exploited to the full in Mannatech’s promotions. Then, only six months after its publication, Mannatech dropped Dr See like a hot potato ... and threatened to sue for fraud. Distributors were warned not to mention him or his research...
In March 1999, following the publication of the JANA paper, Dr See went on a tour of Australia (where laws are less restrictive as far as selling bogus health products) to promote Mannatech and recruit new distributors and customers. When questions arose about why he was out touring, instead of being back in California at the university, See claimed that it was more important for him to be spreading the message about this new miracle product, and Mannatech claimed that See was "taking a hiatus to write, educate and publish the results of his research".
However, it would later emerge that he had resigned from his University post in September the previous year, before the results of his study were published.

In August 1999, the Orange County Register and the Los Angeles Times carried stories that See’s work was under investigation at UCI. They said he had been asked to resign following internal audits into the conduct of some of his previous research - there had been allegations of conflict of interest, and he had broken research rules. Now the publication of the JANA study had alerted the Medical School to the fact that See was still representing himself as a faculty member there, and they also had questions about the study itself. They had never heard of it - as the Orange County Register of August 6 put it, "The university has no record of the grant or the research".

...See [wrote to] JANA on August 3, 1999 to set matters straight. He admitted that he was not affiliated with UCI when he submitted the article to the journal, that his wife "distributed, resold and/or recommended in her practice products from several of the companies with products in the study", and that he himself "was a paid consultant to one of the companies with products evaluated in the study at the time of the manuscript preparation".

In other words, he was working for Mannatech and his wife was a Mannatech distributor. According to one newspaper report, he had already received over $100,000 for his services...
I also found an interesting forum, The Complaint Station, which has a thread discussing Mannatech. The first post is from March 2004 by a person in a similar situation to Kitty's blogger, who writes:
... I'm tired of carnival people and their ** enemas and the rest. Shame on any of you for putting your damn pyramids in place and not caring about human beings. Money hungry b******s.
There were about a dozen responses, last one in June 2004, a majority (unfortunately) being defenses of Mannatech.

The most interesting pair of links I found were to 2 sites, Mannatech -- Fraud and Mannatech -- Scam. As you will see if you click on either link, what you get sent to is a site promoting Mannatech products!
MANNATECH SCAM

Low Cost Glyconutrients Direct From Mannatech

Order Ambrotose & all your Mannatech products here at below wholesale pricing. Complete product descriptions & ingredients.

www.LowestCostStore.com
Bizarre! I can sort of see the sense to having google-listings under Mannatech-Fraud and Mannatech-Scam, so that even people a little dubious about the product are going to get sent to a sale site rather than an expose site, but putting SCAM in big, capitalized letters at the top of the page seems a little counter-productive. Maybe I'm misreading something... Is this a common practice?
 
Thanks for the info. I"ll pass it on...

I'm willing to buy the cheap quartz necklace for a friend dying of cancer (I did it with my husbands cousin). There is a guy at craft shows in the area that sells various stones cut into cute animal shapes. He prints out little stories about how the "wolf" gives you courage and the quartz will focus your energy. He charges about $2.00 and lives in a trailer in town. For $2.00, it made my cousin in law happy. I also got her some cool hats to wear while she had no hair.

I did tell her husband I didn't believe in it, but since she wrote and asked me to look for "healing products" (knowing Vermont is a hot bed of alternative everything), I felt I should give it a go. $2.00 was the cheapest I could do, plus it was cute.
 
Zep said:
Eos, I would be VERY careful to be sure the "patient case" was not some faked up sob story put up as an inducement by the drug company (or whatever it is) to draw in donations. If they are cynical enough to try to sell their junk to dying people, they may well be cynical and cold enough to run this sort of low-down scam. I smell a rat...

Facts first, OK?
I thought of that too Zep, but agree with Kitty.

Mannatech is not a "drug" company. They are alternatives, and MLM.

A drug company would not get away with the setting up donations for themselves.
 
The forum knew about the questionable practices of Mannatech 2 years ago! I just found out about them while watching 20/20 last night.

Watching that poor girl keep faith in sugar pills while she dies of brain cancer made me furious.
 

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