Fibromyalgia "relief" claim

[CriticalThanking]

In doing some research on medications at a usually useful, though ad-strewn website, I came across an ad for something called Saloxin. Its claimed use is for fibromyalgia symptoms, primarily pain. I have several friends with severe pain and hoped to see what I thought was a new drug available. What I saw immediately set off alarm bells.

"What The Experts Tell You About Saloxin™”
By now you know I use Saloxin™ and have finally found relief from the pain and utter frustration of fibromyalgia. Here’s what everyone else thinks about it... [sic]

Medical, research, and scientific organizations all around the world have put their stamp of approval on the potent combination of ingredients found in Saloxin™.

We sought out scientists, researchers both funded and independent, studies and tests for the most comprehensive wealth of information available.

We ended up working with 28 different Universities in the United States and also internationally, 3 independent testing labs, and over 450 national press and media contacts to look at Saloxin™ and try to pick it apart.

Our own team also performed exhaustive studies–and here’s what we found…

99.4% of all people who purchased and administered Saloxin™ as directed reported a positive result.

93.7% said that their loved one’s memory loss symptoms had completely vanished.

And, more than that, Saloxin™ has been shown to do so without the potentially damaging side effects of conventional medications and treatments.

Hmmm... no side effects, "positive results" in nearly 100% of patients...93% of patients with memory loss had complete reversal of this symptom... Wow! I'd better look at the studies.

Here's your proof positive that Saloxin™ works!

That’s your proof positive that Saloxin™ works!


Your Universities and Medical Testing Labs

You can see by what these experts say the ingredients in Saloxin™ really work.

Studies in Europe and Canada, where these ingredients are readily available show that the active compounds in Saloxin™ bring impressive results.

Ummm.... no, I did not have a copy/paste error. There are no links, and no information about the studies or the ingredients.

Ok - the truth starts to come out... "About The Company" Selmedica HealthcareSaloxin™ manufactures every product that we sell in our own state of the art facility under the strict guidelines of the U.S. Food and Drug Administration's Good Manufacturing Practices, or "G.M.P." Before you buy any dietary supplement, always ask whether it was manufactured under FDA Standards. So far, so good - FDA guidelines... but now the next sentence is... Selmedica HealthcareSaloxin™ products are neither approved nor disapproved by the FDA. At this time the food and drug administration does not review, approve or disapprove any dietary supplement itself. Statements about Saloxin™ made here have not been evaluated by the Food and Drug Administration. Saloxin™ is not intended to diagnose, treat, cure, or prevent any disease. Ok - it is really a "dietary supplement," not a medicine. One sentence touts it as being produced under FDA guidelines, then the next has the disclaimer that the FDA has nothing to do with the product. And the kicker - BUY NOW BEFORE THE FDA SHUTS US DOWN! P.S. Saloxin™ is currently available without a prescription. However due to pending regulation of this industry the US FDA may soon classify Saloxin™ a drug, which would force us to raise our prices considerably. Saloxin™ would then be available only through a physician (with a prescription), or possibly not at all. Due to these facts the availability of Saloxin™ may become limited at any time. Prices stated on this website are subject to change without notice. Order today to avoid disappointment! Whose disappointment? Theirs, as they will be sad if you don't cough up the dough. Yes, I know woo treatments can be found alongside legitimate scientific info. I'm just mad at myself for getting all excited about treatment for a condition that affects my friends that turns out to be the usual sCAM. I guess I'll turn the rant off here and use it on the feedback form on the ad's website. Grrrrr.....

CT

 

[popsy]

Oh boy! I can't wait to get some of that. I'm totally convinced that a dietary supplement will make my FMS go away. This completely convinced me, "You can see by what these experts say the ingredients in Saloxin™ really work." But what ARE the ingredients in Saloxin? Am I going to be one of the unlucky .6% for whom it doesn't work? At least there will be no side-effects.(except maybe a lighter purse?)

And this is just so wonderful. "Studies in Europe and Canada, where these ingredients are readily available show that the active compounds in Saloxin™ bring impressive results." So I'm guessing that no one in Europe and Canada are suffering the effects of FMS anymore? I'm moving there just as soon as I can.

The above remarks of mine consist mainly of sarcasm.

 

[brodski]

Oh boy! I can't wait to get some of that. I'm totally convinced that a dietary supplement will make my FMS go away. This completely convinced me, "You can see by what these experts say the ingredients in Saloxin™ really work." But what ARE the ingredients in Saloxin? Am I going to be one of the unlucky .6% for whom it doesn't work? At least there will be no side-effects.(except maybe a lighter purse?)

And this is just so wonderful. "Studies in Europe and Canada, where these ingredients are readily available show that the active compounds in Saloxin™ bring impressive results." So I'm guessing that no one in Europe and Canada are suffering the effects of FMS anymore? I'm moving there just as soon as I can.

The above remarks of mine consist mainly of sarcasm.

as Mrs Brodski has CFS, I've gotten to know a lot of people in the UK with FM. I guess I would know almost 20 times as many if it weren't for Saloxin™
Mind you, given the nature of these conditions, and the lack of effective treatment, I'm only surprised when a woo product isn't touted as the latest "cure".

 

[Euromutt]

And this is just so wonderful. "Studies in Europe and Canada, where these ingredients are readily available show that the active compounds in Saloxin™ bring impressive results." So I'm guessing that no one in Europe and Canada are suffering the effects of FMS anymore? I'm moving there just as soon as I can.

There's something highly amusing about watching an American infomercial on late-night television in Europe, and having some fifth-rate actor enthuse about how this product was developed and is in widespread use "in Europe." So how come the first time I've heard of it, despite living in Europe, is on this American-made infomercial at 2 AM? When pushing a crap product, it always sounds more impressive if it's exotic, the cutting edge in technology somewhere where the target audience doesn't live. In North America, push it by saying it's the latest thing from Europe or Japan; in Europe, push it by saying it's the latest thing from America. When trying to push woo notions in Europe, claim that "studies in America have shown"; in America, claim that "studies in Europe have shown."

Of course, in the age of the internet, that tactic doesn't work anywhere near as well as it used to.

 

[CriticalThanking]

Of course, in the age of the internet, that tactic doesn't work anywhere near as well as it used to.

Hmmm.... I have to disagree. I've probably stolen this from somewhere, but I think we are just as stupid as we used to be, just faster at it.

CT

 

[gfunkusarelius]

living in thr US, i can comment on the "from [anywhere except the USA]" mentality- i think it is less the exotic woo and more of the paranoid "the FDA keeps all the good drugs off the market to exploit the consumer" that draws people in. theres this mentality that in other countries there is access to all the "good stuff." i remember not too many years ago there was a lot of debate about speeding up the approval process because people wanted access to drugs they were hoping would help them- now the drug co's are getting sued for rushing thru trials...anyway

 

[mollyblack]

We're looking to move out of Texas and possibly to Las Vegas for a few different reasons and while looking for a Fibromyalgia doctor (true ones are VERY difficult to find) I came across this site:

http://www.fibroandfatigue.com/

Let me know how many bells and whistles it sets off for you?

 

[Miss Anthrope]

We're looking to move out of Texas and possibly to Las Vegas for a few different reasons and while looking for a Fibromyalgia doctor (true ones are VERY difficult to find) I came across this site:

http://www.fibroandfatigue.com/

Let me know how many bells and whistles it sets off for you?

I can't hear the freight trains down the street over the bells ringing.

Seminars and videos? That's alwasy the first major bell to to toll.

Why do I have the feeling ANYONE who walks into their "centers" will be diagnosed? I have a lot of pain, fog, and fatigue. Yet, nothing on that site made me want to see them over my new, excellent doctor.

 

[fls]

These things make me suspicious:

They sell supplements.

They do not provide references to research.

None of the physicians listed have formal training in the specialties relevant to the treatment of fibromyalgia.

It is not HonCode accredited.

Compare this to a site like http://www.mayoclinic.com/.

Linda

 

[mollyblack]

Exactly!

These things make me suspicious:

They sell supplements.

They do not provide references to research.

None of the physicians listed have formal training in the specialties relevant to the treatment of fibromyalgia.

It is not HonCode accredited.

Compare this to a site like http://www.mayoclinic.com/.

Linda

The amount of on this site is ridiculous. Sadly it is not helping me in my search to find a pain management/FMS specialist. GRRRRR.

However it is annoying and entertaining all at once.

Anybody from Las Vegas want to chime in with any good leads?

 

[to.by]

I once had a couple of patients diagnosed with fibromyalgia. No treatment I prescribed had any effect, but they came in about once a month and we chatted for half an hour and it seemed they coped a little better. Acollegue of mine was suffering from this ailment and she said: I can either sit at home and have pains or go to work and have pains.I choose the latter. It seemes to me that fibromyalgia respods better to learning how to cope than to any other treatment.

 

[becomingagodo]

I thought the cure for Fibromyalgia was a placebo effect, I watched it on House the first episode where he gives the person sweets. The end was really funny as the person came back asking for more, well you know the rest.

 

[eir_de_scania]

Studies in Canada and "Europe". I like that. Which European country/countries?

 

[Miss Anthrope]

I once had a couple of patients diagnosed with fibromyalgia. No treatment I prescribed had any effect, but they came in about once a month and we chatted for half an hour and it seemed they coped a little better. Acollegue of mine was suffering from this ailment and she said: I can either sit at home and have pains or go to work and have pains.I choose the latter. It seemes to me that fibromyalgia respods better to learning how to cope than to any other treatment.

While we're comparing anecdotes, I can tell you that my experience as a sufferer has not quite been that. Meds that help me sleep have made the biggest impact. Also, stress is a big trigger for me. If I get over-stressed, I have months of awful pain and fatigue. Stress does factor in to the coping realm, but sometimes career related stress can take a huge toll as far as symptoms go.

And you do not mention your "patients" problems with fatigue. There are some days that I barely have enough energy to get up and do the smallest task. The way I have been told to cope with this is to give myself permission to rest.

Sometimes I get the FMS "brain fog" so bad that I can barely have a conversation. Once an articulate person, I sometimes sound like a stroke victim because I mix up words.

Dealing with a period of intense pain, poor sleep, irritable bowel, irritable bladder, mental fog and exhaustion is not just a matter of "learning to cope" for me. There is little any doctor can do for the symptoms except take the edge off. But it's more than just "being in pain at home or at work". If it were just pain, as bad as it is, "learning to cope" might be easier.

For me the pain is simply one awful aspect I live with. I know a couple of people with FMS, and it is not that simple for them, either.

 

[Miss Anthrope]

I thought the cure for Fibromyalgia was a placebo effect, I watched it on House the first episode where he gives the person sweets. The end was really funny as the person came back asking for more, well you know the rest.

Since I haven't seen this I am probably missing the joke. In general the five years I've had serious symptoms of FMS have been particularly unfunny.

 

[David Rodale]

Since I haven't seen this I am probably missing the joke. In general the five years I've had serious symptoms of FMS have been particularly unfunny.

It would seem more logical to be skeptical of the the system that hasn't helped you rather than ridicule every "unproven", "unapproved" modality as being useless.

I had always thought I was a skeptic until joining this forum which I'm finding to be more of a cult of conformity than a search for truth. No matter what the subject, anything not adhering to the status quo of the Priesthood is beaten to a pulp right from the start, then the vultures move in for the cleanup.

Why not investigate and even try one of these "woo" products or nutritional regimens? You never know. Individuals respond differently; there are very few one-size-fits-all for anything for that matter. If you find a modality that works, you can then come back here, report your success and be laughed off the forum.

I can't speak for fibromyalgia, but for other inflammatory pain, the proteolytic enzyme serratia peptidase (serrapeptase) helped my sister with RSI, then her daughter with chronic shoulder pain from an injury. If you'd like the source, I'll give it.

Personally I do not use serrapeptase, but have been using DMSO (another demonized substance) for over 20 years mainly for joint pain in my wrist and hand. It works great for my horses as well. No doubt the minions will pile on in due course. No matter, suit yourselves.

Good luck.

 

[Miss Anthrope]

It would seem more logical to be skeptical of the the system that hasn't helped you rather than ridicule every "unproven", "unapproved" modality as being useless.

I had always thought I was a skeptic until joining this forum which I'm finding to be more of a cult of conformity than a search for truth. No matter what the subject, anything not adhering to the status quo of the Priesthood is beaten to a pulp right from the start, then the vultures move in for the cleanup.

Why not investigate and even try one of these "woo" products or nutritional regimens? You never know. Individuals respond differently; there are very few one-size-fits-all for anything for that matter. If you find a modality that works, you can then come back here, report your success and be laughed off the forum.

I can't speak for fibromyalgia, but for other inflammatory pain, the proteolytic enzyme serratia peptidase (serrapeptase) helped my sister with RSI, then her daughter with chronic shoulder pain from an injury. If you'd like the source, I'll give it.

Personally I do not use serrapeptase, but have been using DMSO (another demonized substance) for over 20 years mainly for joint pain in my wrist and hand. It works great for my horses as well. No doubt the minions will pile on in due course. No matter, suit yourselves.

Good luck.

Nothing like speaking without knowing the slightest about a situation.

I had a doctor send me to a naturepath in 2002 to try all manner of manner of woo rememedy to no avail. Two doctors in my history of trying to find relief have recommended "alternative" therapies. Some tried to sell me on the idea of diluted water and glucose pellets......you know, homeopathic medicines. No thanks. I know enough about grade school science to be able to dismiss that notion out of hand.

I also research issues to form my opinion. When I google "fibromyalgia", however, I find the first page riddled with "fibromyalgia is curable! Cured in days!" ads.

Really, I don't have to try these products in particular to dismiss them. I have educated myself about this disease. Those claims are complete lies. I don't have to waste my time and money to know this.

This is hardly a cult of conformity, and even if this forum had one, I would not belong to it. But instead of finding out about me before speaking, you just made a sweeping generalization without any information at all. Really skeptical of you. No really, I'm impressed.

 

[wilks]

Why not investigate and even try one of these "woo" products or nutritional regimens? You never know. Individuals respond differently; there are very few one-size-fits-all for anything for that matter. If you find a modality that works, you can then come back here, report your success and be laughed off the forum.

I can't speak for fibromyalgia, but for other inflammatory pain, the proteolytic enzyme serratia peptidase (serrapeptase) helped my sister with RSI, then her daughter with chronic shoulder pain from an injury. If you'd like the source, I'll give it.

Personally I do not use serrapeptase, but have been using DMSO (another demonized substance) for over 20 years mainly for joint pain in my wrist and hand. It works great for my horses as well. No doubt the minions will pile on in due course. No matter, suit yourselves.

Good luck.

As anyone with a chronic illness or chronic pain will be able to tell you, friends, family and acquaintances are continually telling you about the latest 'miracle cure' that worked for them, their Mum or their dog.
If I was really silly enough to try anything and everything because of some anecdote then not only would I rattle but I would also be severely out of pocket.
How is anyone supposed to decide which anecdotal report is worth trying?
Can't you see that it is common sense to evaluate the available evidence for a recommendation before committing to it?

 

[mollyblack]

I once had a couple of patients diagnosed with fibromyalgia. No treatment I prescribed had any effect, but they came in about once a month and we chatted for half an hour and it seemed they coped a little better. Acollegue of mine was suffering from this ailment and she said: I can either sit at home and have pains or go to work and have pains.I choose the latter. It seemes to me that fibromyalgia respods better to learning how to cope than to any other treatment.

I wish that was the case with me. I have tried for years and years and only gotten worse. I've tried everything you can think of. Herbal remedies, changing diet, acupuncture, therapy, friend's who call themselves "Reiki Masters" doing things long distance, etc.

I'm a skeptic, but I don't want it said that I turned down a sincere thing that anecdotally has worked for other people.

Me however?

In massive pain and mostly bedridden. So as the other person said, a TV show may have made a joke out of it, but it's anything but funny when you're suffering through it.

And anybody who says that it is because I'm a skeptic that all of those things didn't work, don't know me or my whole story.