It seems I must have been the only person who couldn't get on to the forum last night - but it was so. Suddenly, around seven o'clock, I got "the server is taking too long to respond" messages, right through till past my bed time. I spent the evening showing
pictures of my holidays to other Golf GTi owners!
I'm going to bow out, because there's no arguing with blind ideology, and because I promised to get back to the Lockerbie issues, where informed debaters are a lot thinner on the ground. However, I did want to comment on the Nataline Sarkisyan case.
Oh FFS, that's just terrible.
ETA: And I'm not being sarcastic. I think it's terrible that any parent would be faced with that kind of thing.
And XJX: That doesn't happen in our country.
Architect is right, but not for the reason he thinks. That wouldn't happen in Britain, NHS or private, because the family would never have been given the impression that a liver transplant was a viable option in such a case.
Thou shalt not kill; but shalt not strive
Officiously to keep alive.
It's hard, when the patient is only a teenager. It seems wrong. But Nataline was dying, and all the sensible options had been tried. What on earth was the point in suggesting a liver transplant?
She had had a bone marrow transplant and chemotherapy and all the standard treatments. She was dying. This wasn't a case of a patient in liver failure, say with chronic active hepatitis, who would be returned to health with a new liver. I am frankly astonished that any ethical surgeon would suggest such a procedure in this case. A 65% six-month survival record? God help us. And where about was Nataline on the prognosis range on that one?
If it was my liver, and I'm a registered organ donor, I'd hope to be looking down from my cloud at someone who was given many years of normal happy life from my carefully-tended liver. Not at some poor dying child who was put through the trauma of very major surgery, anti-rejection medication and all the rest, for an only slightly better-than-even chance that she might survive long enough to recover from the surgery.
How many donor livers does the USA medical system have access to, for goodness sake, if it can throw them away like this? Even if donor livers are cheap as chips, is there any way it can be ethical to put a patient through this, for no possibility of cure or long-term benefit?
Maybe it's easier for vets to raise this subject, but we often have to say to owners, gently, "who are you doing this for?" Yes, human patients will take more than animals will, as I remarked about Ducky. But there still has to be a bit of realism. Grief-stricken parents are not the people to be making such decisions. Offering them completely unrealistic heroic interventions is in itself cruelty.
Nataline had been in a vegetative state for weeks. She wasn't the one pushing for this. It was her parents - at the instigation of her medical team.
Cui bono?
If there's a villain in this piece, my vote goes to the leukaemia team and the transplant team for even considering this in the first place, and suggesting it to the parents. They're not thinking, this is a major operation which in itself brings with it considerable pain and suffering, and the best it can do is draw out the dying process by a few months. They're just seeing another straw to clutch at.
How much did these doctors and surgeons stand to gain personally from doing that surgery? I think it's a valid question.
Cigna HealthCare refused to pay for treatment, citing policy provisions which do not cover services considered experimental, investigational and/or unproven to be safe and/or effective for the patient.
Bingo. No, it wasn't experimental. It wasn't proven to be safe or effective for that patient. But they caved in to overwhelming emotional pressure.
This isn't identical to the Nicky Blunden situation, but it's extremely close. It's even closer to one of the poor example cases in
Sicko, where an insurance company wouldn't fund a bone marrow transplant for a man dying of kidney cancer, after all potentially effective treatments had failed. The patient's wife was hysterically begging the insurance executives for her husband's life, and all I could think of was, who the hell suggested to her that a bone marrow transplant was a viable treatment in this case, and how much would he have been paid for doing it.
With Nicky Blunden, as Tatyana has so clearly demonstrated, we have a drug of very questionable efficacy and very questionable safety, being pushed like mad by Big Pharma. The US insurance companies have caved in.
Cui bono? Who has shares in whom, I ask? NICE begs to differ, and is looking at the drug on an experimental basis, to see whether its risk/benefit equation is actually acceptable. It's not going to throw money at Big Pharma just on its say-so, because NICE doesn't have shares in anyone, and nobody has shares in NICE.
So, neither of these cases is a good one to demonstrate evil rationing by healthcare payers hell-bent on saving money at the expense of human lives. But so long as Nicky Blunden keeps being brought up in this context, then Nataline Sarkisyan is an excellent counter-example. An excellent demonstration of how desperate patients and media hype can give an entirely false impression of what is going on.
The difference is, searching for real examples of US patients being denied genuinely beneficial treatment is only limited by media fatigue causing many cases to go unreported. This isn't the case when examining NHS patients.
Rolfe.