My sister, who lives here in Houston, has been diagonsed with ankylosing spondylitis. She is the sole support of her family of four (husband, two sons). She has been in incredible pain for the past year, but very reluctant to take pain meds as they make it hard for her to concentrate on anything, much less her job. She has what is considered "great" healthcare insurance.
She recently went in for epidurals into her spine so that she could walk more then 100 feet without keeling over in pain. Her rheumatologist set up the epidurals at a specific clinic and they were done. The shots made a world of difference to her and she's been much more active because of them.
Yesterday, she received in the mail a bill for $2,200 because the clinic and the anestheologist (sp?) were not covered under her health care plan. That was for one of the rounds of injections and she had three rounds... $6,600 total.
And now the rheumatologist wants her on Enbrel, which will basically make her uninsurable should she ever lose her current coverage. She was seriously considering not going with the Enbrel because of the non-insurability factor, but is picking the prescription up today.
Oh, and she's not into woo at all and has had to stop visiting the Rheumatoid Arthritis boards and the AS boards because the woo is very prevalent therein. There are people taking methadone as a way to treat their undiagnosed rheumatoid arthritis and swear by it!

The boards also are full of the "horrors" of the UK's system and how terrrible it would be to have that in the States.
It's WAY past time for a health care system wherein people wouldn't have to be afraid of losing their coverage should they lose their job or because of pre-existing conditions.